Sponsored by the U.S. Department of Energy Human Genome Program
Human Genome News Archive Edition
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In this issue...
DOE '99 Oakland Highlights
In the News
Ethical, Legal, and Social Issues
Web, Other Resources, Publications
Meeting Calendars & Acronyms
In the News
Genetic Testing Advisory Committee
The Secretary's Advisory Committee on Genetic Testing (SACGT) of the Department of Health and Human Services (DHHS) held its first meeting in June. Chaired by Edward McCabe (University of California, Los Angeles), the 13-member committee's task is to help DHHS formulate policies on the development, validation, and regulation of genetic tests, particularly DNA-based diagnostics. SACGT was formed last year on the recommendation of the NIH-DOE Task Force on Genetic Testing.
At the meeting, the committee set up working groups to address the adequacy of governmental oversight of genetic tests and to plan how to gather public perspectives. Members also identified nine broad areas that will require the committee's consideration over the next 2 years. These include education, access to testing, diversity issues, stigmatization, rare disorders, introduction of tests into clinical practice, use of evidentiary-based models and outcome assessments, economic issues in genetic testing and oversight, and direct marketing of tests.
The electronic form of the newsletter may be cited in the following
The Human Genome Project (HGP) was an international 13-year effort, 1990 to 2003. Primary goals were to discover the complete set of human genes and make them accessible for further biological study, and determine the complete sequence of DNA bases in the human genome. See Timeline for more HGP history.
Published from 1989 until 2002, this newsletter facilitated HGP communication, helped prevent duplication of research effort, and informed persons interested in genome research.