Sponsored by the U.S. Department of Energy Human Genome Program
Human Genome News Archive Edition
Human Genome News, January 1991; 2(5)
The Human Genome Project is faced not only with formidable scientific challenges but also with important ethical, legal, and social questions arising from the availability of new genetic information. Questions related to genetic testing, counseling, access to genetic information, and insurability have led to the funding of projects designed to study these issues.
In FY 1990 the National Center for Human Genome Research (NCHGR) allocated $1.6 million to such projects initiated by the Center's Ethical, Legal, and Social Implications (ELSI) program, headed by Eric Juengst.
Studies, conferences, and research projects funded by NCHGR include the following activities:
The NCHGR ELSI program is also working with the DOE Human Genome Program and other organizations to disseminate information about the implications of genetic research.
The electronic form of the newsletter may be cited in the following style:
Human Genome Program, U.S. Department of Energy, Human Genome News (v2n5).
The Human Genome Project (HGP) was an international 13-year effort, 1990 to 2003. Primary goals were to discover the complete set of human genes and make them accessible for further biological study, and determine the complete sequence of DNA bases in the human genome. See Timeline for more HGP history.
Published from 1989 until 2002, this newsletter facilitated HGP communication, helped prevent duplication of research effort, and informed persons interested in genome research.