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Human Genome News Archive Edition

Human Genome News, May 1991; 3(1)

Studies of Testing, Counseling for Cystic Fibrosis Mutations

RFA HG-91-01

Assistance awards are available for studies of the clinical delivery of individual and family educational and counseling services related to DNA-based testing for the genetic mutations that cause cystic fibrosis. The following NIH institutions invite applications:

  • National Center for Human Genome Research (NCHGR),
  • National Institute of Child Health and Human Development,
  • National Center for Nursing Research, and
  • National Institute for Diabetes and Digestive and Kidney Diseases.

This RFA is intended to solicit research projects that can be used to identify clinical practices that best increase patient understanding of disease-gene carrier testing and test results. Practices should also protect individuals and families from test-related psychological harm, stigmatization, and discrimination.

Appropriate topics include education before testing, counseling after testing, optimum test settings, levels of understanding and interest among different populations, recordkeeping and disclosure policies, and test accuracy and cost-effectiveness.

Timetable

  • Letter of Intent receipt (recommended but not required for application): May 1.
  • Application receipt: June 7.
  • Initial and council reviews: July-September.
  • Earliest award: September 30.

For additional information or a copy of the complete RFA, contact:

  • Eric T. Juengst, Director; Ethical, Legal, and Social Implications Program; NIH NCHGR; Building 38A, Room 614; Bethesda, MD 20892; 301/496-7531; Internet: ejs@cu.nih.gov

HGMIS Staff

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Human Genome Program, U.S. Department of Energy, Human Genome News (v3n1).

Human Genome Project 1990–2003

The Human Genome Project (HGP) was an international 13-year effort, 1990 to 2003. Primary goals were to discover the complete set of human genes and make them accessible for further biological study, and determine the complete sequence of DNA bases in the human genome. See Timeline for more HGP history.

Human Genome News

Published from 1989 until 2002, this newsletter facilitated HGP communication, helped prevent duplication of research effort, and informed persons interested in genome research.