Sponsored by the U.S. Department of Energy Human Genome Program
Human Genome News Archive Edition
Human Genome News, September 1991; 3(3)
On receiving requests for information on genetic disease groups, HGMIS refers inquirers to the sources below, all of which will direct callers to other groups that may meet the caller's needs. The list is printed here as an aid to readers who may also receive these requests. Please contact HGMIS to share information on other comprehensive genetic disease groups or sources.
NORD is a clearing house for information on rare disorders that also supplies a list of applicable support groups.
AGSG has a comprehensive list of support groups for many diseases and a regional list of genetic counselors to whom people can be referred.
NHIC is a referral service that gives the names and numbers of government agencies or national organizations having information on particular diseases.
The electronic form of the newsletter may be cited in the following style:
Human Genome Program, U.S. Department of Energy, Human Genome News (v3n3).
The Human Genome Project (HGP) was an international 13-year effort, 1990 to 2003. Primary goals were to discover the complete set of human genes and make them accessible for further biological study, and determine the complete sequence of DNA bases in the human genome. See Timeline for more HGP history.
Published from 1989 until 2002, this newsletter facilitated HGP communication, helped prevent duplication of research effort, and informed persons interested in genome research.