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Human Genome News Archive Edition

Human Genome News, September 1991; 3(3)

HGMIS Lists Genetic Disease Groups


On receiving requests for information on genetic disease groups, HGMIS refers inquirers to the sources below, all of which will direct callers to other groups that may meet the caller's needs. The list is printed here as an aid to readers who may also receive these requests. Please contact HGMIS to share information on other comprehensive genetic disease groups or sources.

  • National Organization of Rare Disorders (NORD)
    P.O. Box 8923
    New Fairfield, CT 06812
    203/746-6518

NORD is a clearing house for information on rare disorders that also supplies a list of applicable support groups.

  • Alliance for Genetic Support Groups (AGSG)
    38th & R Streets, NW
    Washington, DC 20057
    800/336-4363

AGSG has a comprehensive list of support groups for many diseases and a regional list of genetic counselors to whom people can be referred.

  • National Health Information Center (NHIC)
    P.O. Box 1133
    Washington, DC 20013-1133
    800/336-4797

NHIC is a referral service that gives the names and numbers of government agencies or national organizations having information on particular diseases.


HGMIS Staff

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The electronic form of the newsletter may be cited in the following style:
Human Genome Program, U.S. Department of Energy, Human Genome News (v3n3).

Human Genome Project 1990–2003

The Human Genome Project (HGP) was an international 13-year effort, 1990 to 2003. Primary goals were to discover the complete set of human genes and make them accessible for further biological study, and determine the complete sequence of DNA bases in the human genome. See Timeline for more HGP history.

Human Genome News

Published from 1989 until 2002, this newsletter facilitated HGP communication, helped prevent duplication of research effort, and informed persons interested in genome research.