Sponsored by the U.S. Department of Energy Human Genome Program
Human Genome News Archive Edition
Human Genome News, January 1998; 9:(1-2)
Genetic Secrets: Protecting Privacy and Confidentiality in the Genetic Era, edited by Mark Rothstein (University of Houston), was published in December 1997. The book arose from a workshop on Medical Information and the Right to Privacy held in 1994 in Washington, D.C. In a comprehensive exploration of the ethical, legal, and social issues surrounding new discoveries in genetics, distinguished experts in diverse fields consider the many contexts in which issues of genetic privacy arise. The contexts range from research and clinical settings to workplaces, insurance offices, schools, and the courts. In the final chapter, Rothstein and others discuss flaws in existing and proposed legislation designed to protect genetic privacy and offer a new set of guidelines for policymakers. Both the book and the original workshop were sponsored by DOE's Office of Energy Research and Office of Environment, Safety, and Health. 448 pp. [Order Department; Yale University Press; P.O. Box 209040; New Haven, CT 06520-9040 (800/987-7323, Fax: /777-9253)]
The electronic form of the newsletter may be cited in the following style:
Human Genome Program, U.S. Department of Energy, Human Genome News (v9n1).
The Human Genome Project (HGP) was an international 13-year effort, 1990 to 2003. Primary goals were to discover the complete set of human genes and make them accessible for further biological study, and determine the complete sequence of DNA bases in the human genome. See Timeline for more HGP history.
Published from 1989 until 2002, this newsletter facilitated HGP communication, helped prevent duplication of research effort, and informed persons interested in genome research.