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Sponsored by the U.S. Department of Energy Human Genome Program

Human Genome News Archive Edition
  Vol.10, No.1-2   February 1999
Available in PDF 
In this issue... 

Genome Project 

In the News 

Microbial Genomics 

Ethical, Legal, and Social Issues and Educational Resources 


Genetics in Medicine 


Web, Other Resources, Publications 


Meeting Calendars & Acronyms 

  • Genome and Biotechnology Meetings 
  • Training Courses and Workshops 
  • Acronyms 

HGN archives and subscriptions 
HGP Information home

The Human Genome Project: Science, Law, and Social Change in the 21st Century

Reports from Cambridge Symposium

The highly successful symposium, "The Human Genome Project: Science, Law, and Social Change in the 21st Century," was held in Cambridge, Massachusetts, on April 23-24, 1998. It was sponsored by the Whitehead Institute of Biomedical Research and the American Society of Law, Medicine, and Ethics and supported in part by the Ethical, Legal, and Social Issues component of the DOE Human Genome Program. This largest ELSI meeting ever was attended by more than 840 lawyers, judges, physicians, state legislators, journalists, educators, students, consumer advocates, and religious leaders. Topics at plenary sessions and breakout groups included genetic privacy, DNA databanks, genetic discrimination, doctor-patient relationships, gene therapy, newborn screening, and gene alteration.

Highlights of several selected plenary talks are given below. Eric Lander set the stage, describing the science behind the Human Genome Project. Mark Rothstein spoke on protecting genetic privacy, which is increasingly important as genetic tests become available. The final two speakers, James Wilson and LeRoy Walters, discussed gene therapy, a class of disease prevention or treatment expected to become more available as technologies unravel the genetic factors involved in disease.

Articles about the talks are listed below:

A Free CD-ROM is also available. It includes meeting syllabus, plenary talk transcripts, and Web site links. Contact Gus Cervini.

The electronic form of the newsletter may be cited in the following style:
Human Genome Program, U.S. Department of Energy, Human Genome News (v10n1-2).

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Acronym List

Human Genome Project 1990–2003

The Human Genome Project (HGP) was an international 13-year effort, 1990 to 2003. Primary goals were to discover the complete set of human genes and make them accessible for further biological study, and determine the complete sequence of DNA bases in the human genome. See Timeline for more HGP history.

Human Genome News

Published from 1989 until 2002, this newsletter facilitated HGP communication, helped prevent duplication of research effort, and informed persons interested in genome research.