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Sponsored by the U.S. Department of Energy Human Genome Program
Human Genome News, January-March 1996; 7(5)
A set of five videos on the Human Genome Project and its ethical, legal, and social implications (ELSI) is now available. In personal interviews and panel discussions, such ELSI topics as insurance and employment discrimination, genetic testing of children, and the impact of diagnoses on family lifestyles and relationships are explored by people who have experienced the issues firsthand. Scientific information is provided by Francis Collins, Director of the NIH National Center for Human Genome Research (NCHGR). The videos are produced by HuGEM, now in its third year as a collaborative education model for consumers of genetic services and health professionals who work in university-affiliated programs across the country. A project of Georgetown University Child Development Center and the Alliance of Genetic Support Groups, HuGEM is supported by NCHGR. Running times are between 19 and 45 min, and videos can be purchased individually or as a set. Individual videos, $15; set, $50.[HuGEM Project; Georgetown University; Child Development Center; 3307 M Street NW, Suite 401; Washington, DC 20007-3935 (202/687-8635, Fax: -8899)]
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The electronic form of the newsletter may be cited in the following style:
Human Genome Program, U.S. Department of Energy, Human Genome News (v7n5).
The Human Genome Project (HGP) was an international 13-year effort, 1990 to 2003. Primary goals were to discover the complete set of human genes and make them accessible for further biological study, and determine the complete sequence of DNA bases in the human genome. See Timeline for more HGP history.
Published from 1989 until 2002, this newsletter facilitated HGP communication, helped prevent duplication of research effort, and informed persons interested in genome research.
