HGPI

Human Genome Project Information Archive
1990–2003

Archive Site Provided for Historical Purposes

U.S. Department of Energy Human Genome Program
Projects in Ethical, Legal, and Social Issues

published October 1999

Foreword | 1999 Projects | Related Web Sites | Completed Projects | Completed Workshops | Retrospective

Web Sites Associated with Projects in This Booklet

  • Hispanic Role Model and Science Outreach Project http://www.hrn.org
  • Responsibility of Oversight in Genetics Research http://www.aamc.org/research/primr/
  • Science and Issues of Human DNA Polymorphisms http://www.dnalc.org/
  • High School Human Genome Program http://hshgp.genome.washington.edu
  • Intimate Strangers: Unseen Life on Earth http://www.microbeworld.org
  • Electronic Scholarly Publishing http://www.esp.org
  • Science Training Initiative http://www.dnafiles.org
  • AAAS Congressional Fellowship Program http://genetics.faseb.org/genetics/ashg/ashgmenu.htm

Other ELSI Web Sites

  • Human Genome Project Information ELSI page
  • Legislative Activity in Human Genetic Research http://genetics.faseb.org/genetics/ashg/legpress/legislat.htm
  • National Bioethics Advisory Committee home page http://www.nih.gov/nbac/nbac.htm. The bioethics committee offers advice to the National Science and Technology Council and others on bioethical issues arising from research related to human biology and behavior.
  • Center for Bioethics, University of Pennsylvania http://medicalethics.med.upenn.edu/. Full-text articles about such ethical issues as human cloning; includes a primer on bioethics.
  • Eubios Ethics Institute http://www.biol.tsukuba.ac.jp/~macer/index.html. Site includes newsletter summarizing literature in bioethics and biotechnology.
  • ELSI in Science http://www.lbl.gov/Education/ELSI/ELSI.html. Teaching modules designed to stimulate discussion on implications of scientific research.
  • Genetic Privacy Act. Model legislation written with support of the DOE Human Genome Program.
  • The Arc's Human Genome Education Project http://www.TheArc.org. Many good resources for families of people with genetic diseases, including fact sheets and Q&As.
  • The Gene Letter http://www.geneletter.com/. Bimonthly newsletter to inform consumers and professionals about advances in genetics and encourage discussion about emerging policy dilemmas.
  • Your Genes, Your Choices http://ehrweb.aaas.org/ehr/books/index.html. Booklet written in simple English, describing the Human Genome Project; the science behind it; and how ethical, legal, and social issues raised by the project may affect people's everyday lives.

Human Genome Project 1990–2003

The Human Genome Project (HGP) was an international 13-year effort, 1990 to 2003. Primary goals were to discover the complete set of human genes and make them accessible for further biological study, and determine the complete sequence of DNA bases in the human genome. See Timeline for more HGP history.

Human Genome News

Published from 1989 until 2002, this newsletter facilitated HGP communication, helped prevent duplication of research effort, and informed persons interested in genome research.