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U.S. Department of Energy Human Genome Program 
Projects in Ethical, Legal, and Social Issues

published October 1999

Foreword 1999 Projects Related Web Sites Completed ProjectsCompleted Workshops Retrospective

Some Representative ELSI-Supported Conferences and Workshops

  • Conference on Legal and Ethical Issues Raised by the Human Genome Project, Held March 7-9, 1991
    Mark Rothstein, University of Houston
  • Conference on Justice and the Human Genome, Held November 1991
    Mark Lappé, University of Illinois
  • National Study Conference on Genetics, Religion, and Ethics
    C. Thomas Caskey, Baylor College of Medicine
  • Workshop on DNA Sequence Acquisition and Interpretation, Held October 1991
    Jan Witkowski, Cold Spring Harbor Laboratory
  • Science and Journalism Conference III, Genes and Human Behavior: A New Era? Held October 1991
    Jonathan Beckwith, Harvard Medical School
  • Second Conference on Computers, Freedom, and Privacy, Held March 1992
    Lance Hoffman, George Washington University
  • Week-Long Educational Forum Focusing on Science, Technology, and Ethical Responsibility, Held June 1992
    Betsy Fader, Student Pugwash USA
  • Genes and Human Behavior: A New Era? Conference Held October 26, 1992
    Jonathan Beckwith, Harvard Medical School
  • Between Design and Choice: The Social Shaping of Genetic and Reproductive Technologies, Held April 2-4, 1993
    Sheila Jasanoff, Cornell University
  • Maximizing the Return from Genome Research: A Conference Concerning the Effect of Patent Scope on Commercial Incentives, Held May 20-23, 1993
    Thomas G. Field, Franklin Pierce Law Center
  • Human Genome Project Conference: Shaping Scientific Public Policy, Held November 1994
    Betsy Fader, Student Pugwash
  • Genes That Make News News That Makes Genes: The Genetics of Complex Traits, Held December 3, 1994
    Jonathan Beckwith, Harvard Medical School
  • Conference on Conflict of Interest in Biomedicine, Held Spring of 1995
    Eric Kodish, Case Western Reserve University
  • Workshop on Molecular Methods for Genetic Diagnosis, Held July 1995
    Eugene Rinchik, Sarah Lawrence College
  • Conference on Controlling Our Destinies: Philosophical, Historical, and Ethical Perspectives on the Human Genome Project, Held October 1995
    Philip Sloan, University of Notre Dame
  • Conference on Promoting and Managing the Application of Genome Research
    Thomas Field, Jr., Franklin Pierce Law Center
  • First International Conference on DNA Sampling and Human Genetic Research: Ethical, Legal, and Policy Aspects, Held September 1996
    Bartha M. Knoppers, University of Montreal
  • Tuskegee Genome Conference: The Human Genome Project and Its Relevance to the African-American Community, Held September 1996
    Edward J. Smith, Tuskegee University
  • The Human Genome Project: What's the Public Got to do With It? A Symposium at the 1997 AAAS Annual Meeting and Scientific Innovation Exposition, Held February 1997
    Gregory and Alexander Fowler, American Association for the Advancement of Science
  • Conference on the Human Genome Project: Reaching the Minority Communities in Maryland, Held June 1997
    Raymond Zilinskas, University of Maryland
  • Symposium on Human Genome Research: Implications for Health in Latin America, Held November 1997
    Peter Main, International Federation of Institutions for Advanced Study
  • Conference on Biotechnology and the Law: New Perspectives on Public Access and Proprietary Rights, Held February 1998
    Robert P. Merges, University of California, Berkeley
  • Conference on the Human Genome Project: Science and Social Change in the 21st Century, Held April 1998
    David C. Page, Whitehead Institute for Biomedical Research
  • Second International Conference on DNA Sampling: The Commercialization of Genetic Research: Ethical, Legal, and Policy Issues
    Timothy Caulfield, University of Alberta
  • Conference on Informed Consent in Human Subject Research, Held October 1998
    Rubye Prigmore Torrey, Tennessee Technological University
  • Meeting on Whose Genes are They--Will the Courts Know? The Impact of Genetics on Justice
    Sandra Ratcliff Daffron, American Judicature Society
  • Conference on the Human Genome Project for Minority Communities in the State of Louisiana, Held April 1999
    Rosalind Hale, Zeta Phi Beta Sorority

Human Genome Project 1990–2003

The Human Genome Project (HGP) was an international 13-year effort, 1990 to 2003. Primary goals were to discover the complete set of human genes and make them accessible for further biological study, and determine the complete sequence of DNA bases in the human genome. See Timeline for more HGP history.

Human Genome News

Published from 1989 until 2002, this newsletter facilitated HGP communication, helped prevent duplication of research effort, and informed persons interested in genome research.