Sponsored by the U.S. Department of Energy Human Genome Program
Human Genome News Archive Edition
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In this issue...
In the News
Ethical, Legal, and Social Issues and Educational Resources
Genetics in Medicine
Web, Other Resources, Publications
Meeting Calendars & Acronyms
The Human Genome Project: Science, Law, and Social Change in the 21st Century
Reports from Cambridge Symposium
The highly successful symposium, "The Human Genome Project: Science, Law, and Social Change in the 21st Century," was held in Cambridge, Massachusetts, on April 23-24, 1998. It was sponsored by the Whitehead Institute of Biomedical Research and the American Society of Law, Medicine, and Ethics and supported in part by the Ethical, Legal, and Social Issues component of the DOE Human Genome Program. This largest ELSI meeting ever was attended by more than 840 lawyers, judges, physicians, state legislators, journalists, educators, students, consumer advocates, and religious leaders. Topics at plenary sessions and breakout groups included genetic privacy, DNA databanks, genetic discrimination, doctor-patient relationships, gene therapy, newborn screening, and gene alteration.
Highlights of several selected plenary talks are given below. Eric Lander set the stage, describing the science behind the Human Genome Project. Mark Rothstein spoke on protecting genetic privacy, which is increasingly important as genetic tests become available. The final two speakers, James Wilson and LeRoy Walters, discussed gene therapy, a class of disease prevention or treatment expected to become more available as technologies unravel the genetic factors involved in disease.
Articles about the talks are listed below:
A Free CD-ROM is also available. It includes meeting syllabus, plenary talk transcripts, and Web site links. Contact Gus Cervini.
The electronic form of the newsletter may be cited in the following style:
The Human Genome Project (HGP) was an international 13-year effort, 1990 to 2003. Primary goals were to discover the complete set of human genes and make them accessible for further biological study, and determine the complete sequence of DNA bases in the human genome. See Timeline for more HGP history.
Published from 1989 until 2002, this newsletter facilitated HGP communication, helped prevent duplication of research effort, and informed persons interested in genome research.